Abiquiu, NM
It's hard to believe its been almost seven years since I was diagnosed with Conn's. Despite surviving the disease and having surgery in 2009, I am still committed to informing and updating readers about the stages of testing required for a proper diagnosis and treatment/recovery plan on this blog. I also find it crucial to share with readers updates on my post-adrenalectomy life and encourage others to share their stories as well.
For me, the surgery was a success, but if you read this blog regularly, my life has changed a lot since surgery-- my hypoglycemia became severe, making things a little more complicated. Stress is still my #1 enemy, but I continue to learn new ways to take care of my delicate system with supplements, acupuncture and a new way of eating-- and living. It's been frustrating and scary, but everything seems to make sense after finding this out. My doctors have been monitoring my pre-diabetic issues for a very long time, even before I had Conn's, and after some really scary episodes complete with erratic behavior and several instances of passing out, finding out why has helped me understand why things have been so off for so long. Even after surgery. But more on that in another blog.
Thank you for writing in and posting your comments. People from all over the world have contacted me to ask questions and share their experiences which is so helpful. Some folks have had easier experiences with Conn's, but many have dealt with the darker side of this disease that includes a multitude of side effects many websites continue to unfortunately omit. It helps others who just found out they have Conn's to see what they can expect, so keep the dialogue going! This blog's purpose is to inform and support and whatever we can do to help the next guy, we should do.
Maybe we are getting closer to getting the attention Conn's patients desperately deserve. I was recently interviewed by a health writer in NYC who wanted to pitch my story to the Dr. Oz Magazine, which is something I think would help A LOT of people out there. Here's hoping they take it. I will keep you posted. Who knows, maybe they will put a group of us on the show where we could share our stories, thereby helping others who live in fear, worried about their own misunderstood symptoms.
Wouldn't that be great?
