June 2013-More post-Conn's Updates

It's been way too long since I last updated this important site. Please don't take my absence as a sign I have moved on after surgery and forgotten about all of you. I've merely been focusing on making a living, literally trying to survive in the high desert where the economy has seemingly vanished (which is Santa Fe, NM). I can honestly say it's often been a challenge living with one adrenal while dealing with the frustrations of work, lousy bosses and landlords. Thank goodness for spring.

I've recently discovered a site called Life Extension  that my scientist friend suggested. Under the adrenal section, I found some good supplements for taxed glands (gland). I now L-Carnitine  and ALA (alpha lipoic acid) which helps build up insulin resistance and is also good for the brain. I'm about to add DHEA which is also good for the adrenals. I have noticed positive effects since starting them a month ago; I have more stamina and am less confused-which is an after-effect not from Conn' s but from CO poisoning in my old rental unit (more on that below). I continue to take vitamins C, E, B (pretty self explanatory). But some new additions include Taurine-an anti-oxident that also helps protect against cardio vascular disease; Lysine-an amino acid for lowering my glucose; L-Theanine-to help curb anxiety and prevent Alzheimer's; Magnesium malate-for fatigue. I am also a big tea drinker and add a mixture of uva ursi and passion flower which helps with UTI's and calms me down.

Re: the CO poisoning-- last October '12- January '13, the wall heater in my house was found to have had a leak in it- determined by NM Gas company in early January. It had been ongoing for months, and I nearly lost my dog, cat, my boyfriend and my own life. The animals slept by the unit and were lethargic and had seemed sick since October. I had severe headaches, confusion and balance issues, followed by depression and exhaustion. My boyfriend had it acutely and was extremely ill. Convinced it was the flu, we found out it was deadly CO gas, 1000 ppm- a very high, lethal amount. We are grateful to all have made it through, though Eddie and I still struggle with lingering issues.If anyone reading this has had a similar situation, please email me (clangrall@gmail.com) .

We have all moved from the property and have begun the healing process, which will take along time according to doctors. After dealing with Conn's, this the second most awful health scare I've ever experienced.

As I navigate through this new health crisis, I am reminded of the lessons I learned when I had hyperaldosteronism.   Be patient, do research, talk to others who have dealt with your condition, be gentle with yourself, have HOPE, and know this too shall pass with the right treatment.

Perhaps it all is a lesson on how I need to take better care of myself. One thing I learned through this hell is that my remaining right adrenal gland sure is a strong one!

Well, that's about it for now. Remember: Stay strong, be your own patient advocate, know there hope for Conn's, don't give up--focus on becoming an ex-Conn like me and take the time to appreciate all that you have.