As a member of the National Adrenal Disease Foundation (NADF), I receive emails each week regarding updates and issues for people suffering from adrenal diseases (Cushings, Conn's, Addison's).
Today, I received a request for stories about adrenal insufficiency or crisis that precipitates patients to go to the hospital or emergency room. The goal of the study is to collect stories to share to legislature to create a better protocol for E.M.T. Many E.M.T. workers are not trained or familiar with the signs of adrenal crisis. This is a good thing they are doing and if any of you have a good story to share, Karen at NADF, is the person you can contact. Her email is: karenf@caresfoundation.org
Many people have contacted me on this site to share their health scares, especially in the early stages of Conn's when potassium levels became too dangerously low, or high blood pressure caused heart attacks or other problems. As well, anyone who has gone to the hospital with severe fatigue, numbness of limbs, brain fog, confusion or polyuria issues that has already been diagnosed with the Conn's Disease, should contact them.
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